Please, please, keep praying for baby Fynleigh
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mjp_hammelPrayers: 0Requests: 5
July 5, 2022 at 10:57 pmDay 34
Not too many changes so we will strike that a positive
– numbers on oscillator are down some – goal to wean 1 mark every 8 -hours -she is handling this with no concerns
– she is totally off of the blood pressure medicine
– she is still proning 16 hours supine 8
– radiology report read “signifigant improvement’
– doctor calls her a super trouper
-she is still showing full brain activity
– zero seizures and has kept up with keytones
– she is still moving her stools and her urine on her own
So while all of this is “minor” it is huge in the setting we are in.
I have said this so many times but I believe we are watching a miracle as a result of the flood of prayers at heavens gates
Please keep them coming
Big big and be brave sis! You are so loved baby girl….so loved!Day 35
Most of the day yesterday I talked to staff about a rising heart rate- increase temp that was not dropping and a few de stats in oxygen none of this was outside of acceptable limits, however given history I was watching it all very close
10pm rounds i talked to docs about it and demanded a blood draw and a urine screen as all of these things together has landed us here at the start of our chaos.
Fast forward 9am……Fynleigh has a UTI. Thank goodness I was able to advocate as they really wanted to watch overnight but I said that is a solid NO for me.
Today she started the antibiotics for that. Her heart rate seems to be back to “normal” however we have struggled with steady O2. We have paused on her vent weaning for the night, but I am confident the drops are a result of the UTI, and we will resume tomorrow.
Overall she is steady but in all honesty one mis step can change our course entirely.
Today great granny and grandy spend some time with Fyn and me.
She also saw her Aunt and Uncle, her Mommy, and lil brother.
These nurses and doctors have run from room to room and floor to floor today answering code after code. please when you say your Fynleigh prayers include them, they have had a rough day and so have those childen and families involved.
I love you all – thank you so much for loving our girl and our family.
BE BIG and BE BRAVE is our new anthem
Love you sis!Day 36
Today was some steps backwards back to Friday. Why? Who knows. Could be the UTI or maybe not
Fynleigh’s heart rate is up lightly
Her oxygen is down slightly
The oscillator setting have gone up to nearly the settings of Saturday and she is at 100% oxygen (but we are trying to wean that down)
I will continue to believe she st needs time.
Todays plan:
Stability
Wean the oxygen next wean the pressure
Change antibiotics to stronger one as the bacteria seems to still be present but in the urine not the lungs
Repeat the respiratory viral panel with COVID screen
Doc agree with me this set back may a result of another UTI but he is aggressively repeating all prev test to ensure we miss nothing.
She is stating good right now (91) with a heart beat of (106)
finally it feels like someone understands this girl can’t be pushed.
Be Big and Be Strong sissy girl you are loved around the world.castillo4Prayers: 13Requests: 4
July 6, 2022 at 12:36 amLord gave Your way. I lift Fynleigh up to you for your healing.
spiritdoc1Prayers: 39909Requests: 2381
July 6, 2022 at 1:03 amPraying🙏🏻
Livin forgivenPrayers: 2410Requests: 16
July 6, 2022 at 5:43 amFather, protect this baby girl Fynleigh
who entered the world at your will.
May she be a living testimony of Your glory
in the life she’s meant to complete.
Amen.Fathers DaughterPrayers: 74Requests: 14
July 6, 2022 at 6:28 am🙏🏼
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